ISupportJamaica to help raise funds for epilepsy careSunday, January 27, 2019
Living with epilepsy can be a challenge; however, it is manageable, said Gail Valentine, who has been living with the disease since age three. She explained that once persons take their medication as prescribed, the disease can be managed.
Epilepsy is a brain disorder in which clusters of nerve cells in the brain sometimes signals abnormally causing strange sensations, emotions, and behaviour, or sometimes convulsions, muscle spasms, and can result in loss of consciousness.
However, Joy McHugh, executive director of the Jamaican Epilepsy Association, explained that the medication can be expensive. She stated that the cost for two to three, or even four to six different combinations of medications, can be from $12,000 to $45,000 monthly, per person. Consequently, many people living with the disease have difficulty purchasing their medication.
“In Jamaica, it is hard for persons with epilepsy to gain employment,” she pointed out. “Because, once it is known that you have epilepsy some employers lose confidence in the individual.”
Acknowledging the challenges of persons living with the disease, Nora Perez founded the association in 2002 to assist in addressing some of the issues.
“Our mission is to improve the quality of life of persons in Jamaica who are living with epilepsy,” McHugh said. She also noted that one of the biggest concerns for individuals with epilepsy, and their families, is how it affects their day-to-day life.
“Epilepsy does not only impact the person with the condition, it also affects how they make a living. Coping with epilepsy is different for everyone, and many persons cannot find employment; therefore, they are unable to purchase their medication,” she informed.
As a result, the association has entered into a partnership with the Jamaica National Group to raise funds via its ISupportJamaica.com platform to assist with funding medication for its members.
The association hopes to raise US$2,000 and all funds donated will be used to assist members of the Jamaica Epilepsy Association with medication.
McHugh stated that interested people can contribute to the initiative under the Jamaican Epilepsy Association Member Care Project, which is mounted on the ISupportJamaica crowdfunding platform.
Phillip Lindsay, operations officer, ISupportJamaica, at the JN Group, said that crowdfunding is beneficial as it is a positive method to gain exposure for projects or business ventures which need to raise financial support. He also explained that contributing to any initiative via the platform is simple and secure.
Donate by visiting the ISupport Jamaica.com platform at www.isupportjamaica.com, click on the project and then click the “Fund Project” button.
In addition, donations can also be made via JN Live e-banking and at any JN Branch or MoneyShop, as well as through interbank transfers.
The Jamaican Epilepsy Association is a registered non-profit organisation funded by donations and fund-raising events. Its mission is to improve the lives of persons with epilepsy in Jamaica and to make a positive difference through awareness about epilepsy and first-aid training. It is the only one of its kind in the English-speaking Caribbean.
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