Dear Editor,

Caring for a child living with sickle cell disease requires regular medical follow-up. I understand that for many parents and caregivers, financial difficulties, work commitments, and other responsibilities can make attending appointments challenging. However, these challenges should not prevent a child from receiving the ongoing care and monitoring he/she needs.

The staff at the sickle cell unit work tirelessly to care for and support patients and their families. Their work involves much more than treating the immediate effects of sickle cell disease. During clinic visits, children have their growth and development monitored, their overall health assessed, and potential problems identified early. Parents also receive guidance and education to help them better manage their child’s condition.

Please do not wait until your child’s condition becomes serious before seeking medical attention. Some complications of sickle cell disease may not be obvious in the early stages. It is important to attend scheduled appointments, ask questions, follow the advice of health-care professionals, and remain actively involved in your child’s care.

I understand that many families are facing financial challenges. Transportation costs and other expenses associated with attending appointments can place an additional burden on parents and caregivers. However, communication is important. If financial difficulties or other circumstances make it difficult to attend an appointment, please speak with the clinic staff rather than simply missing the appointment.

As parents and caregivers, we must make our children’s health a priority. Regular clinic visits are not simply another appointment to fit into a busy schedule; they are an important part of managing sickle cell disease and protecting a child’s health.

A visit today could prevent a crisis tomorrow.

Shaneil Cooper

Senior medical technologist

shaneilcooper7@gmail.com